Biopsy Results Round Two

This week has been long. Robby and I are still sick with upper respirtory infections. I am bummed and frustrated.

The baby is slowly getting better which is a good sign and he has also been sleeping on his own for a few nights. Which has been wonderful. Maddy has been helping me get him back to sleep this past week which has been so nice and cute. She calls herself his little mama... :) She is an amazing big sister with so much love for him, even though most days she wishes he was her sister instead. She is still begging for a sister, but I have put my foot down on that subject. One girl is enough for me! :)

On Wednesday this sharp pain came back to my lower side where my shingles were in November. So I called the Neurologist since I am in the middle of switching family physicians I really did not want to go to the family doc and was hoping my nuerologist could just help. They really couldn't and recommended I go back one more time to my old family doc. (the problem is I haven't met my new family physician yet, that appt is next week) So tomorrow I will have them check out my shingles area and see what they say. Shingles can return at any time and usally affects a person when their immune system is down. Well my immune system never really got better since the first Shingles episode in November. I have been sick ever since.

I then asked my Nuerologist's nurse if they got the second round of Biopsy results back and they did. On Christmas eve the muscle was tested and as far as she can see the results are normal. Dr. Mackin will go over them with me on Jan 22. There is one more round where they will look at my Cytochrome C Oxidase. I am no longer holding my breath on those results. They will more than likely be normal too.

I really don't know what to say. After all we have been through with the baby maybe I shouldn't be so shocked (since they say it is not mito with him). But after spending four years learning about the disease, it was the one thing that seemed to explain my entire sick childhood and adulthood. I mean truly sometimes I feel like a freak, maybe it is all in my head. But then my girlfirend Amy reminded me that I cannot makeup Bilateral Cataracts at age 24 in both eyes and I cannot make up neuropathy,muscle cramps, migraines, severe asthma, GI issues, nor can I make up the purple toes and hands (the docs call that Reynauds). There is so much that I have had no control over that as she said "it is not all in your head". Thank you Amy because I am glad someone believes me.

I have started a pretty good vitamin regimin and the B12 has really been doing wonders to my energy, I am also on 50,000 units of Vitamin D for 3 weeks and then 2500 units of it daily after that.  A normal adult's level should be between 50-60 according to my allergist/asthma doc and my level was a 19. I truly believe that the vitamins are making a difference but I am still frustrated at having no answers. My asthma doc has also been trying to figure out why my lungs are so inflammed and has upped my Singulair in hopes that it will help, also using double the Advair inhaler.

So anyway enough about all of that if any of my new friends from around the country are reading this and recognize any of these symptoms please let me know. I am desperate. This is also the reason I am switching family physicians because I feel that mine just don't know enough and also think it's all in my head. I need a family doc that is going to be genuinly concerned with helping me find answers.

I see my eye dr. today for another check on my eyes which are like everything else getting worse. Hoping I just need a new prescription.
I am looking forward to a relaxing weekend with the kid and will return with updates in a few days.