I promised to post something more positive this week. My post yesterday was not very nice but I needed to get it off my chest.
I will post later today. I promise. I am on the phone with Social Security now. The Government sucks with SSI. Poor Robby!
If It Were Not For Hope The Heart Would Break
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About Me
Maddy and Robby
"Life does not have to be perfect to be wonderful." -- Annette Funicello Robby
My beautiful boy, Robby, is 8 and was born with a genetic abnormality of unknown etiology. A duplication of his Xq28 chromosome complicated with Mitochondrial deficiency Complex 1. He is considered CP with Mild Optic Atrophy, Intermittent Strabismus, Seizures and has Autism secondary to the genetic abnormalities. He uses a walker/wheelchair and MAFO's and he is learning sign language. Madison Marie
My beautiful girl. Madison is 9 and enjoys art, music and reading. She plays softball, ice hockey and soccer. She also loves to catch butterflies, and play with her friends. 
"Every child is gifted. They just unwrap their packages at different times." -- unknown 
"You've developed the strength of a draft horse while holding onto the delicacy of a daffodil ... you are the mother, advocate and protector of a child with a disability." -Lori Borgman Check me out on Facebook! |
1 comment:
Oh My...I am so sorry for what is on YOUR plate! YOU are courageous, strong, and you are a wonderful mom...I know how lonely it can be...doing it all alone...but you are doing it, and you putting your kids first, and you should be very proud of yourself. I am proud of you!
I am even more proud of you for seeking God, vs. running from Him. YOU ARE NEVER ALONE...He sees all your struggles, knows your hearts desires, holds every tear, and feels your frustrations...if you let Jesus in your heart, you will find peace you never imagined and a Fathers love that will fill you with all you need!
Keep seeking, find godly women and people for support, you will find His people all around you.
I wanted to email you personally, I have more to say, just not publicly. If you want, email me or leave me your email in comments on my blog...I just feel God calling me to share my heart with you.
Take care, and remember...you are quite amazing yourself!
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