Thanksgiving and a Long Overdue Post!

Hello to all,
So sorry it took me so long to update you!
I have been out of commision with Shingles but am now back to the everyday life. Today is my first day back at work and while it feels good to be back to work I am thankful for the rest I had last week. I am still in tons of pain but no longer contagious.

As for our holiday it was nice. I had the kids on Thanksgiving eve and half the day on Thanksgiving. On Thanksgiving eve we went to church, before we left I fed them but had a very difficult time with Robby. I plan to post that feeding session here as soon as possible, I videotaped it on my phone but cannot figure out how to upload it here. As soon as I do you will get to see it. It is bad. I have been told it could be the seizure medicine increase is causing this behavior or that it is just behavior in general. Either way I have already called the neurologist and am going to talk to Easter Seals tomorrow. Thankfully I was able to get him to at least drink his nutritional drinks over the last few days to keep his calories up.

That night we went to church it was the first time we used Robby's new wheelchair. I have posted pics below. I have to take 6 different pieces apart and back together in order to get it into my Grand Cherokee. So when we got to church it was dark and no parking lot lights...Maddy was holding my cell phone open so we could use it as a flashlight. It was a riot! We laughed so hard. It took 20 minutes to put it together in the dark. And we wound up late for services, but Robby wheeled himself and did a good job. We even got to ride in the elevator to the sanctuary. That was fun! Maddy had fun and wanted to help push him.
When we got to the car I took it apart and was putting the pieces in the trunk when the chair started to roll away. I forgot to put the brake on! That was even more hysterical as I was running in the dark after a chair! Had there been other handicap spaces open we would have had light near the church entrance.

Madison has been doing ok. She is really having a hard time with the attention the baby gets. She wants alot of one on one time with me and honestly even when we get alone time I am at a loss for what to do. It has been so long since we had a normal life that I can't remember how to be a normal mom! Last night we were watching extreme home makeover and I was trying to tell her how there are a lot of siblings that have special sick siblings. I want her to know she is not alone.
She acts out but I think it is just mainly for attention. She loves to see her therapist when I have her. We see Ms. Lisa every two weeks and she enjoys her talk time!

So that's all for now. I will try to post the feeding video and new pics soon.