We had a great morning at church and I was so glad I got to celebrate our good news about Robby with our new church family. We also joined in prayer for Gavin and his family. It was really nice. A whole congregation that never met this boy will now be in prayer for him and his family. Really special.
We came home and made a Jewish apple cake with Madison for a going away surprise party for one of my favorite coworkers tomorrow. Maddy loves to bake with me. Now I am trying to rest and lose this darn headache before Gavins celebration of life today.
I feel like I am celebrating a lot of life this past two weeks! It is an incredible bitter sweet feeling.
If It Were Not For Hope The Heart Would Break
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About Me
Maddy and Robby
"Life does not have to be perfect to be wonderful." -- Annette Funicello Robby
My beautiful boy, Robby, is 8 and was born with a genetic abnormality of unknown etiology. A duplication of his Xq28 chromosome complicated with Mitochondrial deficiency Complex 1. He is considered CP with Mild Optic Atrophy, Intermittent Strabismus, Seizures and has Autism secondary to the genetic abnormalities. He uses a walker/wheelchair and MAFO's and he is learning sign language. Madison Marie
My beautiful girl. Madison is 9 and enjoys art, music and reading. She plays softball, ice hockey and soccer. She also loves to catch butterflies, and play with her friends. 
"Every child is gifted. They just unwrap their packages at different times." -- unknown 
"You've developed the strength of a draft horse while holding onto the delicacy of a daffodil ... you are the mother, advocate and protector of a child with a disability." -Lori Borgman Check me out on Facebook! |
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