Behavior sucks...

Robby's behavior worsened this weekend.
Madison's improved.

Go figure!! HAHA.

So let's start with the good. Madison was a charm this weekend. She is so freaking cute. I really have to get new pic of her up here again. This weekend we went to the mall and mommy got her new Nikes since I threw her others out (because they had holes in the them) She was so upset this week when she put her only Nike outfit on (I am not huge on brand names but the kid does go to Parkland so one outfit is OK) and she couldn't find her matching Nike shoes.
So this weekend we found a pair of Nikes that match the one outfit (which she'll probably outgrow before the shoes!) And they were even on sale!!!  How cool! They didn't have them in her size so they are mailing them to the house for her. She is so excited.
Then yesterday she raked leaves and helped me make a Jewish apple cake (which didn't bake all the way because at work this morning it was mush! Oh well we tried). We did church and Sunday school, always a fun time and we even went on a bike ride together to look at houses in the neighborhood and pick out our favorites, so someday when mommy can afford her own house (haha, like that'll ever happen) we know which ones in the neighborhood we want to buy! We ended the night with a movie called the Blue Butterfly thanks to Nonna. It was based on a true story and was really good. I highly reccomend it!
She was so great!

Now onto Behavior boy...
Robby is increasingly becoming more of a challenge in regards to the behavior. I just got of the phone with his Neurologist and she suggested an increase in the Risperdone to .25 ml twice a day. I asked how safe that was and she said the low dose he is on now allows us lots of room for increase. She also felt twice a day would help spread the medicine out throughout the day. She also suggested a child psychiatrist to help manage the behavior. Another specialist...just what we need. The headbanging and self stimulating behavior scares me.
Also last night when I put him to sleep (which he fought like crazy) I checked on him later and his pillow was a puddle of drool! I kept thinking "is this another sign for another seizure" since last time he had the Grand Mal he had a puddle of drool on the pillow and a few weeks before that it had also happened. I didn't know but it scared me. So I slept with him all night. Maddy was bummed because I told her she could sleep with me and I wound up cuddling with him. She came into the room in the middle of the night and crawled into her top bunk I felt so bad. She just wants attention like the baby and it is so hard to give it to her sometimes. But I try really hard.

As for me the Neurontin they put me on for the neuropathy is making so me so tired. And my GI issues are reoccuring although I don't think it is the medicine causing them. Who knows between me and the baby we are a medical mystery. It is so frustrating.

I never made it to Gavin's Celebration of Life. I left for it but returned shortly after I got on the road. I was really tired from the baby, had a major headache and really missed Madison and felt bad for leaving her.  She needs as much of my time as possible. I thought of Gavins family all day and really regret not going but needed to be with the kids.

Please keep on praying for Gavins mom, dad and big sister Madison. They need prayers. They are an amazing family. I have a link to their blog below.