If It Were Not For Hope The Heart Would Break
Sunday, October 25, 2009Tired and cranky
Well Robby is stable tired and cranky. His EEG is 930 tomorrow. I am home with Maddy and Rob stayed with the baby. He chewed through his IV cord tonight... silly boy. He keeps asking "bye bye" I have never been so happy to hear him say that! I am exhausted. I will update tomnorrow after tests. Please keep him and Maddy in your thoughts. Thank you all!
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About Me
Maddy and Robby
"Life does not have to be perfect to be wonderful." -- Annette Funicello Robby
My beautiful boy, Robby, is 8 and was born with a genetic abnormality of unknown etiology. A duplication of his Xq28 chromosome complicated with Mitochondrial deficiency Complex 1. He is considered CP with Mild Optic Atrophy, Intermittent Strabismus, Seizures and has Autism secondary to the genetic abnormalities. He uses a walker/wheelchair and MAFO's and he is learning sign language. Madison Marie
My beautiful girl. Madison is 9 and enjoys art, music and reading. She plays softball, ice hockey and soccer. She also loves to catch butterflies, and play with her friends. 
"Every child is gifted. They just unwrap their packages at different times." -- unknown 
"You've developed the strength of a draft horse while holding onto the delicacy of a daffodil ... you are the mother, advocate and protector of a child with a disability." -Lori Borgman Check me out on Facebook! |
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