The New Norm

Today is the start of the new norm for us.
I got up early and dosed out new meds and divided pills. Robby's seizure meds have increased and we now have to carry Diastat in case of another seizure. So daycare, school, Rob and I have our own supply.
Rob brought the kids up this morning, he did not get too much sleep as he worried all night about Robby again. Last time Robby fell asleep with dad he had a seizure so I can understand how Rob was feeling. We have decicded that just for now Robby can sleep with us at night. At least until we feel comfortable letting him on his own again. We are going to debrief with the neurologist tomorrow. It will be about a 2 hour appt.
Madison is doing well through all of this. She is at school today and so is Robby.
Yesterday after we were released I picked Maddy up at school and then went to the peds clinic where we met Rob and Robby so they could get their H1N1 shots. It was the first time she had seen him since this all happened. She looked happy to see him. When I got her at school I heard the nurse say she hit a new record in sending 11 kids home that day because of flu like syptoms.
It is here. The Swine flu has hit Parkland and I am scared. Scared that my children could get sick and scared that Robby will not be able to fight it off due to his immune system. My hospital actually stopped letting people under the age of 18 in the hospital on Saturday. This is why it was hard for Maddy when this siezure happened with Robby. The hospital would not allow her in so she never saw Robby better until yesterday. How scary... the last thing she saw was her baby brother convulsing. Life will never be the same.
This is our new norm.