Today was my muscle biopsy. They took the biopsy from my upper left quad and it hurts like heck!
I feel so bad because the baby went through this when he was only one year old. It feels like I strained my muscle and it will take around two weeks to heal. It went better than I expected and I did ok on the anesthesia.
Now comes the hard part...waiting for the results. That can take up to 6 weeks because the muscle has to be sent out. They are testing for all neuromuscular diseases not just Mito. I will be better once I know what is truly going on and hopefully it can lead to more answers on the baby.
The kids are with their dad this weekend and I will be resting as much as I can. Monday is my eye surgery.
Thanks for checking our blog out and I will talk to you all soon. I will update towards the end of the weekend.
If It Were Not For Hope The Heart Would Break
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About Me
Maddy and Robby
"Life does not have to be perfect to be wonderful." -- Annette Funicello Robby
My beautiful boy, Robby, is 8 and was born with a genetic abnormality of unknown etiology. A duplication of his Xq28 chromosome complicated with Mitochondrial deficiency Complex 1. He is considered CP with Mild Optic Atrophy, Intermittent Strabismus, Seizures and has Autism secondary to the genetic abnormalities. He uses a walker/wheelchair and MAFO's and he is learning sign language. Madison Marie
My beautiful girl. Madison is 9 and enjoys art, music and reading. She plays softball, ice hockey and soccer. She also loves to catch butterflies, and play with her friends. 
"Every child is gifted. They just unwrap their packages at different times." -- unknown 
"You've developed the strength of a draft horse while holding onto the delicacy of a daffodil ... you are the mother, advocate and protector of a child with a disability." -Lori Borgman Check me out on Facebook! |
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