And the Frederick-Prohaska Family is Back!!!

After many many months of being really sick I am finally back to about 75%.

We have had so much happen in the last month I hardley know where to begin. So for the fun part first here are some new pics of the kids.

First we will start with Robbys graduation from Easter Seals, there's lots so enjoy!

Mommy, Maddy, Robby and Daddy

So happy for our baby!                                          RAP III and RAP IV

Mama and Robby

The family! Aunt Stacie, Uncle Dave, Nonna

and mommy, daddy, maddy and the grad!

Aunt Stacie and Robby

Robby with his aide Toshia

Getting ready to walk!

Look out world here I come!

Toshia and Robby

Robby in his special chair

Robby giving mama his present! Actually Robby was voted most likely to play baseball and the look on his teachers faces are priceless because my boy has an arm! He actually threw it at me!

Here's the diploma!

Robby giving Toshia aye-aye's!

Some other recent pics!

.

This picture is of Maddy at the duck race that Rob took her to on the 4th of July!

Her duckie came in pretty far back. There were over 300 ducks and kids!

This is Sarah, Maddy and Robby's new puppy at their dad's house. Sadly their dog Murphy went to Heaven this past Monday. Sarah was added a few days later to the fam!  She is 8 weeks old and is so tiny!

Ok so onto the other news in our life.....

I'll start with Robby first. His seizures have increased. And so because of this his medicines have increased. The Docs belive that Robby's body may be metabolizing the Lamictal to fast so we are adding an afternoon dose now too. He had two grand mal seizure in two days last week. One on Monday June 28 at 4:15 a.m. and another at 10:24 p.m. on Wednesday, June 30. Thankfully he was sleeping next to me both times. Rob and I both agree we feel better when he is with us.

I did not have to give diastat on Monday because his body actually stopped seizing on its own. The one on Wednesday required diastat and it scared me most because I could not suction him since I don't have a machine.

That changed this week, we have now added suctioning to our lives. It is horrible. I can't stand watcing my beautiful boy seize and then to have to stick this plastic tube in his mouth and suction him. It just breaks my heart.

So this is our newest reality.

Robby is also now at home fulltime with his old nursing staff and agency that we had when he was first born. Robby could no longer stay at the medical daycare daily because he required too much one on one attention.

It is nice to have him home. But I know both Robby and his old nursing staff miss each other terribly.

Everybody loves my little boy.

I took the kids bowling this weekend together for the first time. It was awesome they set it up just for Robby and his wheelchair. I'll post pics tomorrow. We also had an annual trip to Kennedy Krieger yesterfay and got some exciting news. I'll post pics of that tomorrow and updates about the appt too. It's getting late and this is getting long :) 

Hope all who are reading this are doing well!