If It Were Not For Hope The Heart Would Break
Tuesday, February 23, 2010Unfun Updates For now I will post this pic. This was Robby sleeping the day after he threw up, which was Ash Wednesday night, after we got home from church. I love this pic with his hand behind his back. I have more unfun things to post that have happened in the last week. The last post was about the Autism conference on Friday. Since then I have been stressed to the max with Robby. I can't post now but will get back to you soon!
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About Me
Maddy and Robby
"Life does not have to be perfect to be wonderful." -- Annette Funicello Robby
My beautiful boy, Robby, is 8 and was born with a genetic abnormality of unknown etiology. A duplication of his Xq28 chromosome complicated with Mitochondrial deficiency Complex 1. He is considered CP with Mild Optic Atrophy, Intermittent Strabismus, Seizures and has Autism secondary to the genetic abnormalities. He uses a walker/wheelchair and MAFO's and he is learning sign language. Madison Marie
My beautiful girl. Madison is 9 and enjoys art, music and reading. She plays softball, ice hockey and soccer. She also loves to catch butterflies, and play with her friends. 
"Every child is gifted. They just unwrap their packages at different times." -- unknown 
"You've developed the strength of a draft horse while holding onto the delicacy of a daffodil ... you are the mother, advocate and protector of a child with a disability." -Lori Borgman Check me out on Facebook! |
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