Wednesday, February 3, 2010

Birthday Girl and Another Diagnosis

Here are some pics of Maddy's Birthday! The Party was awesome and all the girls and 3 boys had a fun time!
                     Here is Maddy with her friends Katey, Olivia and me
Here is Aunt Stacie G (in the pink) Aunt Bernadette (her Godmother) and Uncle Dave

Uncle Jim and Cousin Sophia below
Sierra, Maddy and Katey
Uncle Jim, Aunt Stacey P and Sophia with Maddy
Mommy and Maddy opening gifts
Here is how Robby spent Maddy's birthday, in Daddy's arms crying
(Very Overstimulated)
I won't bore you with the bad details of Rob and I arguing most of the day, all I can say is that everytime we have a day like that I remember why I left. He can be so immature and just unhelpful. Sigh..... :(   Although he did spend the entire party with Robby because that is who Robby wanted that day. He was having some behavior/emotional issues and the environment didn't help because it was very noisy and busy!

Anyhow, Robby is feeling better he had a stomach bug yesterday and I am not sure if he is completley over it but I think he is getting there. He is keeping gatorade and pedialyte down and slept a whole lot. No more poopy diapers. I think he probably caught a bug at her party.

Maddy and I are good so far, thank goodness.

I had an eye Dr. appt yesterday. So as you all know I had bilateral cataracts removed when I was 24 and 25 out of both eyes. I also had secondary cataracts removed from both eyes. My vision has been getting worse each month and I was recently diagnosed with dry eye and 25% vision loss in both eyes. I am only 29 and the dr. said I am too young to have this going on but they also don't know why. So frustrating. So I went to see the Dr. yesterday and questioned my medical records that had been sent to me from his office. On them it said I had Fuchs Dystrophy in my eyes. No surprise to me as it is a genetic condition that affects 1% of the population and is passed down from parents. My mother has it and now it is starting to happen in my eyes. Oh well, nothing they can do about it now. They can eventually do corneal transplants when it gets to the point that I can no longer see.

Anyway I accept the Fuchs Dystrophy, just another thing to keep an eye on (no pun intended)  but there has to still be a reason for the cataracts and the rest of the nueromuscular issues and that is why I continue my search. My mom wants me to stop searching. But as long as we continue to search for the baby and advocate for him then I will continue to do the same for myself. Because if I get sick who will take care of the baby?!

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