Our local friend Alex was featured in our paper yesterday. Here is the link.
http://www.mcall.com/news/local/all-a5_5burbs.7143687jan13,0,6577694.column
Alex and his family could really use some extra prayers now as they are batteling some tough days with Alex and his Mito. Please keep them and his doctors in your thoughts so that they may hopefully find some answers to help him as this is the worst it has been since he was first diagnosed.
He is such an amazing kid.
Katie and Steve - We are thinking of you daily!
If It Were Not For Hope The Heart Would Break
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About Me
Maddy and Robby
"Life does not have to be perfect to be wonderful." -- Annette Funicello Robby
My beautiful boy, Robby, is 8 and was born with a genetic abnormality of unknown etiology. A duplication of his Xq28 chromosome complicated with Mitochondrial deficiency Complex 1. He is considered CP with Mild Optic Atrophy, Intermittent Strabismus, Seizures and has Autism secondary to the genetic abnormalities. He uses a walker/wheelchair and MAFO's and he is learning sign language. Madison Marie
My beautiful girl. Madison is 9 and enjoys art, music and reading. She plays softball, ice hockey and soccer. She also loves to catch butterflies, and play with her friends. 
"Every child is gifted. They just unwrap their packages at different times." -- unknown 
"You've developed the strength of a draft horse while holding onto the delicacy of a daffodil ... you are the mother, advocate and protector of a child with a disability." -Lori Borgman Check me out on Facebook! |
1 comment:
Just wanted to say hi...sorry I haven't emailed back, it's been a bit crazy on my end. Sorry you are still not feeling well.
Cute pic of Robby.
Hope you guys are having a great weekend and feeling better!
Prayers are with you!
Hugs...
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